Introducing Savannah Grace

Savannah Grace was born 12/10/12 

 Savannah was born almost full term and weighed 6lbs 1oz. She had great scores when she was born but my husband and I were very concerned about her breathing which was extremely loud and she was snorting when breathing and sounded like a little pig. The nurses and doctor dismissed our concerns and said that all babies sound stuffed up and noisy because they can't blow their noses and that there was nothing to be concerned about. As weeks went on we realized that not only did Savannah have some trouble swallowing when drinking from a bottle but she also had extremely noisy breathing especially when asleep. People would comment on how loud her breathing was and it wasn't until one day we realized that she had noisier breathing when laying on her back than she did laying on her stomach. She has a milk and soy intolerance so I adjusted my diet so I could continue to pump breast milk for her however the swallowing issues complicated things because we found out that thickening breast milk with rice cereal is a no go since there is something in breast milk that breaks down the cereal. So that was that, we switched her to Alimentum formula. My daughter has had a chronic cough since March and she's been to the hospital 2-3 times, urgentcare once, and her regular doctors office more times than I can count on my fingers and toes. I keep being told things like oh, she has a virus it will go away, or it's just broncholitis give it 2 weeks. Then my daughter started waking up in the middle of the night coughing really hard she would choke and scare myself and my husband half to death. She's already on reflux medication so I decided I would take her to see a pulmonologist  which I did most recently in the beginning of June 2013. He ordered a 2nd swallow study and thankfully I finally was able to get proof that my daughter has been aspirating during feedings. We follow up with him on June 12th and I've decided to keep an online timeline journal so that not only I have records of everything going on but others can keep up to date with what is going on with Savannah. Plan of action next is to request more testing!